Sunday, June 14, 2009

Hannah Update 2.17.09

Just a quick update this afternoon....Hannah had a pretty good night last night. She was very restless all afternoon and early evening, but about 9:00 they gave her something to help her settle down and sleep, She slept pretty well after that, but had some periods of wakefulness where she would talk to us. It's difficult to understand some of what she says, but she is still working to communicate. This morning, she sat up and ate part of a Krispy Kreme doughnut (while communicating to us that it was not as good as a El Dorado readers will appreciate that!) She has slept peacefully all afternoon, but did wake up long enough to eat an orange.

Our regular oncologist came by and visited with us today. He said that the MRI indicated that the original tumor has returned, bigger than ever, all of the other existing spots are bigger, and there are new spots. He actually used the word "disturbing" to describe the progression of the disease. He did say that he believes the chemotherapy had some effect...basically, that it would be even worse if we had not done that...and that the chemo probably gave us some additional time. He came into the room and shared the results with Hannah and told her that we were out of medical options. She accepted the news gracefully and without fear.

It looks like we are going to spend another night here at Children's. We should be moving to a hospice facility here in Little Rock tomorrow morning. We have decided not to do a home hospice program due to the fact that Hannah has a continuing need for platelets to keep her from having any more severe bleeding episodes, and she cannot get those in a home setting. There is a hospice center on Bowman in Little Rock that is willing to provide platelet infusions, and our social worker is working out the details for us to go there. It sounds like an excellent facility. We have lots of family here with us, keeping us company. Hannah recognizes everyone and does her best to visit as she is able.

We are so thankful that Hannah is in no pain or distress, and is resting very comfortably and peacefully. We believe that the arms of Jesus are open wide to receive her when she is ready to go, and that provides an unimaginable peace. We have received so many wonderful emails over the past few days, and although we cannot respond to all of them, please know that every one is being read, treasured, and saved. We are so blessed to have so many wonderful prayer warriors lifting us before the throne. Thank you.

God is good, all the time!

Jill & Brad

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