We're at Children's waiting for platelets...she's at 55,000 today, which is good, because she hasn't had an infusion since Monday. That means that these platelets were all made by her body. They still want to give her some, since we're heading into the weekend.
We have not yet seen any improvement in her vision or balance since starting the steroids. If anything, her balance may be worse...we had to walk into the hospital today arm in arm to make sure she didn't fall. We talked to our specialty nurse today about getting a wheelchair, and she said she will have one delivered to our house, probably over the weekend. We've also gotten a handicapped tag to hang from the mirror in the car. She is somewhat frustrated by her limitations, but is still in good spirits. I think it's harder on us than her. She's still sleeping quite a bit, but her appetite has improved with the steroids.
A wonderful friend shared a passage from 2 Kings 19 this week and I wanted to share it with you...
Assyria was bullying King Hezekiah. The Assyrians were boasting of the power of their armies and how all the other kingdoms had fallen to them...no other gods had been able to stop the mighty Assyrians. But the prophet Isaiah sent these words of God to Hezekiah just as a reminder that He was in charge and not those who lived in the world:
"Do not be afraid of the words which you have heard..." 2 Kings 19:6
God is good, all the time!
Jill & Brad
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