Thursday, November 24, 2011

Glory Girl Update

Here's the latest update on sweet little Glory, posted by her Mom on the "Fight Like a Glory Girl" Facebook page a couple of days ago...

"We could never thank all of you enough for your encouragement, thoughtfulness, and mostly your prayers. I think a little of all of our hearts are breaking today. Every time I get negative news from Glory's doctors, I mourn another piece of the idea I had the moment I found out I was pregnant with her...the idea that she would grow up playing with her sissy...the idea that she would graduate high school, get married, and have babies of her own...even the idea (although possibly in a less conscious manner) that I would die before her. Over the past year, those hopes have been less and less as Glory fights an uphill battle.

I generally do not mention Glory’s medical diagnosis in detail or dwell on her list of defects simply because it is not what defines Glory. What defines her is her smile, the way she loves, the way she is loved by those around her, the way she talks with her eyes, the way she thinks her sissy is the best person in the world… I could go on and on. But I want to list her defects now because I want you to understand how strong (medically) she is… Hypoplastic Left Heart Syndrome, Double Outlet Right Ventricle, Atrioventricular Canal, and Heterotaxy are her heart defects. She was also born with esophageal atresia (the upper portion of her esophagus is not connected to her stomach), tracheophageal fistula, asplenia (she was born without a spleen), and bronchomalacia (her left lung is very underdeveloped and weak). It is important that you understand that she should not have survived one week. I want you to know that her life today is a miracle. I wish she was going to be with us for years and years, but the likelihood of that is getting smaller and smaller. It is worth mentioning here that I do believe that God can heal Glory at any time, but the world we live in is not perfect, and only He knows the future. Glory has already accomplished more in her 16 months than most of us do in 50 years..I could not be more proud of her. Please join me in celebrating her life in the days ahead (even though we don’t know how many)…she is here now…she is still smiling. None of us know what day is our last, so we are going to continue on and enjoy every moment we have with Glory Girl. I could not feel more blessed to be her mother and spend even one more day with her. She is, and has always been, a result of your prayers.

The picture is of her today enjoying watching The Polar Express with Mo-Mo. She has not felt well the past few weeks, but if she has any energy to do anything, she is smiling. :) Please pray for our transition home, for Glory to be happy and comfortable, for us as we make daily decisions about Glory’s care, and for Eliana.

Three things will last forever – faith, hope, and love – and the greatest of these is love. I Corinthians 13:13."

As we all celebrate Thanksgiving today, let us all hug our family members a little bit tighter and squeeze every bit of joy out of our time together.  Let us be truly thankful for the blessings of faith, family, and the hope of Heaven. 

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