Wednesday, October 14, 2009

Fields of Faith

Tonight was the Fields of Faith event at Lakeside High School in Hot Springs. This event was sponsored by the Fellowship of Christian Athletes and underwritten by the Kamo's Kids Foundation. The Kamo's Kids Foundation was established in memory of Kameron Hale, a sixteen-year-old Lake Hamilton student who died following a 4-wheeler accident in January. We never had the opportunity to meet Kameron, but from all we've heard, he was an amazing Christian kid who was a friend to everybody. We met his parents a few weeks ago, and have begun a friendship with them. It's amazing how quickly you can form a bond with someone who has experienced the same kind of heartbreak you have.

The crowd began to build by about 6:30 this evening...and eventually grew to over 1,000 people.

Bethany was one of seven student speakers this evening, all chosen from different high schools around the area. Each of the students spoke for about five minutes on different topics, and all of them did a wonderful job. Bethany was very nervous...it is a frightening thing to speak about such a personal subject in front of your peers...but she did a great job.

After the students spoke, a former professional football player shared for a few minutes (his name escapes me at the moment), and an excellent drama team performed a very moving skit. The FCA director wrapped it all up by sharing Kameron's story, and referring back to the things Bethany had said about Hannah. An invitation to follow Christ was given, and we sat there on the astroturf next to Kameron's parents and grandparents, tears rolling down our cheeks, as literally hundreds of kids went forward.

What an amazing experience! We could just imagine Hannah and Kameron as part of a great cloud of witnesses in Heaven, smiling as they watched those kids turning their lives over to Christ. How humbling it is to know that the ripples of their lives are still being felt. In fact, a little boy from our church (about 10 or 11 years old) came up to me tonight tugged on my sleeve, and said, "I want to tell you something." I leaned over, and he said in my ear, "Mrs. Jill, you know your daughter who died? Her life had an impact on me." Hannah would be so pleased.

Tuesday, October 13, 2009

A Praise and a Prayer Request

First the praise...My brother is home! Well, he's not "home", as we think of "home", here in the United States, but he and his family have finally been able to return to their home in Indonesia. When they got back yesterday, they found that fires had burned up to the very edge of their town, even destroying some of the buildings on the outskirts. They're just so glad to be back in their own house (one they had only been in for a couple of months before they had to evacuate) and not having to share their living quarters with another family. Thank you for your prayers for them. I am grateful that they are comfortable enough in Indonesia to consider it "home".

Now the prayer request...Bethany has been asked to share her testimony tomorrow night at a Fellowship of Christian Athletes-sponsored event called "Fields of Faith". She has shared her story several times, but this will be by far her largest audience. The event will be held at a football stadium in Hot Springs, and there should be a big crowd there. There will be several speakers throughout the evening, so she will not be the only one, but she is understandably nervous about the event. Please pray that God will give her the words she needs to say, and that the students will hear what He wants them to hear. I will try to take some pictures and post them tomorrow night!

Monday, October 12, 2009

Through the Valley

"It is not for the flock of sheep to know the pasture the Shepherd has in mind. If they knew that His plans included a valley of deep shadows, they would panic. Keeping close to the One they've learned to trust is all that's necessary." ~Elisabeth Elliot

Elisabeth Elliot knows of which she speaks. Her first husband (of 3 years) was killed in 1956, speared to death while attempting to share Christ with the Auca Indians of Ecuador. She later returned to South America and was instrumental in leading her husband's murderers to the Lord. She remarried in 1968, and her second husband died of cancer four years later. She has written over twenty books, many of them about suffering and how God uses suffering in our lives.

I always used to wish I could see into the future. I'm a planner by nature, and I like to have everything scheduled out. I write everything in my calendar and look at it several times a day to make sure I'm on track. Suffering and grief don't follow a schedule, though, and that's taken some adjustment. The calendar is not always my friend these days. I recently emailed with a woman who lost her daughter, a junior in high school, ten years ago. Ten years sounds like an eternity right now. It's hard to imagine how all of this will feel ten years from now...in a way, it sounds great to be that distant from the heartache, yet at the same time, I can't imagine being that far separated from the last time I saw Hannah. But then, it will also be ten years closer to seeing her again...and that sounds good!

A wise pastor once said that God does not give us a roadmap of our lives, because if He did, our eyes would always be on the map, and not on Him. I don't know what the next ten years holds, or even the next ten hours. But that's okay...He knows.

Thursday, October 8, 2009

Sorry, Mom!

Tomorrow, October 10th, marks a milestone...It is my parents' 50th wedding anniversary. My mom and dad have never liked a lot of attention, and told my brothers and me that they did NOT want any kind of party in recognition of this event. My mom also specifically said that they did NOT want their picture in the paper...especially a "then" and "now" set of pictures. She jokingly said that the people look so OLD in the "now" picture, and she sure didn't want people talking about how old they look now! Well, sorry, Mom...I said I wouldn't put any pictures in the newspaper...but I am going to put them on my blog! So...


...here's Tom Persenaire (then)...

...and Betty Kapteyn (then)...

...the happy couple on October 10, 1959...

...and the happy couple now!


I think they look great! This picture was taken on their recent trip to the Canadian Rockies, where they went to celebrate their anniversary. I took this picture from my mom's Facebook page (that's why it's so small...I tried to make it bigger and it just got blurry) and I figure if she uses it as her Facebook profile picture, it's okay to post it here! They had a great time on their trip to Canada, and my brothers and I are sending them to the Lodge at Mount Magazine for a couple of days, where they will engage in one of their favorite pastimes...fishing!

Their marriage has been a wonderful example for their children and grandchildren, and we are so proud of them. I know that I am blessed beyond measure to have a mom and dad who love the Lord and each other. Thank You, Lord, for Christian parents!

P.S. Some people have asked how to post a comment...just click on where it says "0 comments" or "1 comment" or "2 comments" (you get the idea!) and it will link to a place where you can leave a comment.

Monday, October 5, 2009

Comforters

Back in the spring of 1989, when we were newlyweds (married two years!), Brad and I planned a trip out west. We have family in Colorado, Oregon, and California, so we decided to make a big circle, stopping to see the Grand Tetons, the redwood forest, the Oregon coast, and the Grand Canyon. We also planned to visit all of our relatives along the way (free food and lodging!), and take in a San Francisco Giants baseball game. We bought tickets for the August 10th game against the Cincinnati Reds. We had a wonderful trip, camping in a tent in the Grand Tetons (we nearly froze to death!), marveling at the enormous trees, enjoying the gorgeous coastline, and being awestruck by the beauty of the Grand Canyon. We also had great visits with our family. But the highlight of the trip ended up being that baseball game.

A few days before the ballgame, it was announced that Dave Dravecky would be making his major league comeback on August 10th. Dave Dravecky was a very successful pitcher who had been sidelined by cancer in his pitching arm. He underwent surgery, a series of cancer treatments, and extensive rehab before making this very well-publicized comeback. We had seats right above the bull pen where we were able to watch all of the activity, and were amazed at the amount of press coverage that this game was generating. As a matter of fact, we were interviewed by a San Francisco TV reporter who was amazed that we had come all the way from Arkansas for this ball game...little did he know that we had bought our tickets six months before! Of course, as a huge baseball fan, Brad was loving every minute of this. The crowd went crazy as Pete Rose got thrown out of the game, and even crazier as Dave got the win. The really cool thing was that Dave Dravecky was an outspoken Christian, and he used this opportunity to very openly share his faith and give glory to God. We listened to all the post-game interviews on the radio as we sat in the parking lot stuck in traffic for what seemed like hours, and his testimony was just amazing. We headed home from our vacation a couple of days later, still talking about Dave Dravecky's story.

The next time Dave Dravecky pitched, his arm broke with a resounding crack that was heard all over the stadium. His cancer had returned, and his arm could not be saved. His arm and shoulder were eventually amputated. Years later, he wrote a couple of books about his experiences called, "Comeback" and "When You Can't Come Back." His wife, Jan, struggled with depression for years, and has also written some excellent books. Together, they have founded a ministry called "Outreach of Hope" (http://www.outreachofhope.org/) which is a designed to be a source of encouragement for those going through the cancer journey. It's a wonderful ministry, and they put out some great free literature as well.

Back when we were watching Dave Dravecky pitch and listening to his story of overcoming cancer, we didn't even have children, and we certainly never dreamed we would face the kind of situation we faced with Hannah. But his story, and his determination to give God the glory in his circumstances, made a huge impression on us...and I truly believe that our presence at the ballgame back on August 10, 1989, was divinely orchestrated. Isn't it amazing how God works in our lives, even when we're completely unaware?

Well, that was a much longer introduction than I meant to give...I was really just going to post a poem that I found in one of the Outreach of Hope publications. I found it last night as I was reading through some of their materials, and I thought some of you might be able to relate to it. I actually think it could apply to a variety of situations, not just a cancer diagnosis. I'll close with it:

Comforters

When I Was Diagnosed With Cancer:

My first friend came and expressed his shock by saying, "I can't
believe that you have cancer. I always thought
you were so active and healthy."
He left and I felt alienated and somehow very "different".

My second friend came and brought me information about
different treatments being used for cancer. She said
"Whatever you do, don't take chemotherapy. It's a poison!"
She left and I felt scared and confused.

My third friend came and tried to answer my "whys?"
with the statment "Perhaps God is disciplining
you for some sin in your life?"
He left and I felt guilty.

My fourth friend came and told me,
"If your faith is just great enough God will heal you."
She left and I felt my faith must be inadequate.

My fifth friend came and told me to remember that
"All things work together for good."
He left and I felt angry.

My sixth friend never came at all.
I felt sad and alone.

My seventh friend came and held my hand and said,
"I care, I'm here, I want to help you through this."
She left and I felt loved!

Linda Mae Richardson
"Victory in the Valley"

Saturday, October 3, 2009

Report from Indonesia

I've had several people ask me how my family in Indonesia is doing, following the devastating earthquakes over there. Well, they are doing fine. They actually live quite far from where the affected area...similar to living in Arkansas and an earthquake happening in California. There is an MAF (Mission Aviation Fellowship) presence in that part of Indonesia, though, and they are involved in the relief efforts over there. Please pray for their safety and for opportunities to share their faith in the midst of all the death and destruction. I was able to visit with my brother on Skype tonight for awhile, and he and his family are still displaced due to the heavy smoke and drought conditions in central Borneo. They are having to live with other missionary families, and it's difficult to live in such unsettled conditions. He is having a lot of opportunities to fly, though, and that's great. Please continue to pray for replenishing, cleansing rains in that part of the country so they can return home.


These are my precious nieces, Julia and Katie. And yes, though they are exactly two years apart, they are nearly the same size! Julia is very petite, and Katie is...well...not. You may remember from a previous post, Julia is the one who always called Hannah "Arnie". My brother told me a story about her tonight that I thought was so cute. He said that she has begun pretending like she's flying a plane to "mecca". At first they were very confused (and probably a little concerned!), wondering why she wanted to go to there, but they finally realized she meant "America"! What a brilliant child!

Thursday, October 1, 2009

Thought Life

One battle I feel that I've been constantly fighting since Hannah's death is with my thought life. When I'm busy and going through all the events of the day, it's really not an issue. But, when things get quiet and I'm alone in the house, or quite often when I'm driving somewhere by myself, my thoughts will wander back to the last couple months of Hannah's illness. Looking back on it, I've realized that I didn't really let myself think too much when we were going through it. I couldn't think too much and still get through the days...especially knowing that I always had to be strong and positive for Hannah. Especially during the times she was hospitalized, and we were together in a very small room 24 hours a day, I had to consciously make myself numb and "hard" in order to get through each day.

That's no longer necessary (although I became quite good at it and can still do it, such as when I'm in a group of moms who are talking about prom or senior pictures), and I now find myself thinking a lot. The problem is that my thoughts seem to always settle on the really bad memories of those final weeks...wondering what we might have done differently to make things easier for her, remembering those final few moments, and regretting the things we maybe should have talked about that we didn't. And, you know, for some reason I usually don't recognize this for what it is...an attack of Satan.

There's a verse I've heard all my life, but it's just recently taken on new meaning to me: "...Whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things...practice these things, and the God of peace will be with you." Philippians 4:8. The thoughts that I mentioned certainly don't fit this description. So, with God's help, I'm working to focus my thought life on the good memories...and there are many. I am so thankful for the almost 17 1/2 years we had with Hannah...one of the greatest blessings of my life!

Tuesday, September 29, 2009

Cousins!

Wow...I can't believe how long it's been since I posted. It's not for lack of desire...it's simply been a lack of time. We have literally not had an evening at home for the past two weeks. Tonight's been wonderful...an opportunity to get caught up on several things that have been left undone in recent days.

First, I wanted to post a couple of pictures that were taken over the weekend by my sister-in-law, Maria. On Saturday, all of the Sullivan cousins, including baby Faith, were at the "deer camp" in Briggsville, which is in rural Yell County. (Actually, I think all of Yell County is rural!) Maria, who is a great photographer, took the opportunity to get some family photos. Here's Bethany (top right) with all of her cousins...yes, they're all girls on this side of the family!


Hannah was the oldest of the cousins...she was fortunate enough to be the first grandchild on either side! As such, she definitely got some special treatment!

And another picture...here's Bethany in her "country girl" pose:
Hannah loved spending time at the deer camp with her cousins. So much so, that when we had to make a decision regarding where she would be buried, there was no question that it would be at Briggsville. There's a small cemetery there where Hannah's great grandparents are buried, as well as several other Sullivan family relatives. It's a beautiful place, and I will share more about it in an upcoming post.

Monday, September 21, 2009

Anchor of Hope Cancer Ministry

The Anchor of Hope Cancer Ministry support group had its first meeting tonight. What a wonderful group of people, and what a blessing it was to hear everyone's stories!

Up until the time Hannah was diagnosed with cancer, I had very little idea what life with cancer was like. I had always thought that when a person was diagnosed with cancer, they spent the next several months or years in bed, too weak and sick to do anything. I had no idea that most people with cancer still live full and active lives, in spite of chemo treatments, hair loss, radiation, bloodwork, etc.! Of course, as Hannah's journey unfolded, I leaned that firsthand. And as I looked around that room tonight, I saw people living life, and loving Jesus. What an amazing experience!

"We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed; always carrying in the body the death of Jesus, so that the life of Jesus may also be manifested in our bodies." II Cor. 4:8-10

Friday, September 18, 2009

God's Infinite Wisdom

"God, in His infinite wisdom, created us with the ability to survive these heartaches."

This is my new favorite quote. And now, almost seven months after Hannah left us for Heaven, I'm beginning to understand the truth of it.

The first few days after Hannah's death are pretty much a blur to me. There are some isolated moments that stand out clearly in my mind, but not very many. It's funny...at the time, I felt that I was completely lucid, and things seemed very vivid in my mind...but when I look back at it now, it's very foggy. I do remember feeling very numb, and honestly not feeling a lot of pain. But after the visitation, after the funeral, after the burial, and after all the family left, it was time to get back to "normal life." And that's when the pain hit in earnest. This may be a strange word picture (okay, it IS a strange word picture), but as I walked through each day, every little reminder (and EVERYTHING was a reminder early on) felt like a plastic knife being shoved into my chest. By the time I got into bed each night, I felt like my chest was literally bristling with plastic knives. Why plastic knives? They are not too sharp...sharp enough to cause a lot of pain when they are thrust into your chest, but not sharp enough to kill you. If anything, the number of knives and the depth of their penetration increased over the next several months.

But, God is faithful, and He has created us to survive these kind of heartaches. Gradually, almost imperceptably, the number of knife wounds each day has begun to decrease. Don't get me wrong...there are times that are just as bad as those early days (the first few days of school this year come to mind), but overall, the pain of the heartache is easing. Those plastic knives are always nearby, and I still get shafted several times a day, but it's become more manageable. I have to be completely honest, and let you know that I am worried about some difficult days ahead...Hannah's birthday in October, Thanksgiving in November, and Christmas in December...I know that those days will bring fresh stab wounds. More opportunities to depend on God for strength. I recently saw a framed saying in someone's house (someone who has lost a child), "God is closest to those with broken hearts." I think that's my new second favorite quote! I never knew what a "broken heart" was...yet another thing I didn't understand in my very sheltered life...but I do now. Thank you, Lord, for your comfort.

Walking wounded we press on,
Our scars but badges of Your grace,
Our fragile frames Your dwelling place,
Our hearts renewed though strength be gone.
Jars of clay beneath a blow,
Broken to let Your glory show.
~Author Unknown

"What Ifs"

One of the constant battles I had to fight during Hannah's illness was a recurring chorus of "What Ifs". When we first found out she had a brain tumor, it was "What if the surgery causes brain damage?" or "What if they can't get it all?" Once she got through the surgery with no lasting complications and they "got it all", the "what ifs" changed to "What if the chemo makes her really sick?", "What if the radiation causes new health problems in the future?" or "What if her cancer comes back?" After the cancer returned, the "what ifs" multiplied exponentially...especially with the location of her new tumors on her brainstem and spinal cord..."What if she loses the ability to walk?", "What if she loses her vision?", "What if she starts having seizures?" or even "What if she doesn't survive?"

I reached the point where it seemed like I was spending all my time dwelling on the "What Ifs". And God had to gently remind me that this was not how I should be spending my time. Instead, I needed to give him the "What Ifs" and begin savoring every moment I had with Hannah. Not that it was easy...it was not easy at all...and it required a continual, conscious decision to put the "What Ifs" into His hands and live one day at a time. I had never really understood the concept of "one day at a time", and had certainly never lived it, until that point. As Hannah's health deteriorated, it became one hour at a time, and sometimes even one minute at a time. I really think it was that focus that made the last couple of months of Hannah's life not only survivable, but even, at times, enjoyable for us.

People often commented on our "strength" during Hannah's illness and death, but as I've said before, this is a misunderstanding of God's grace. What appeared to be strength was actually human weakness bolstered by total dependence on God. A couple of weeks ago, we had the privilege to share Hannah's story at a church in Mountain Home, and after the service we visited with a gentleman who had lost his wife to cancer after many years of marriage. Our visit was brief, because there were many others waiting to speak to us that night, and a few days later, he emailed us to share a little more of his story. He ended his email with this statement:

"God in His infinite wisdom created us with the ability to survive these heartaches."

What a simple, yet profound statement! And I am daily discovering that it is true. More on this thought tomorrow....

Monday, September 14, 2009

Go Panthers!

Last Friday night, we went to a Panther football game, and it was my first time to see the "HS" stickers on the players' helmets. (I was working in the concession stand during the first game and didn't get to watch it!) It was an "away" game, and the visitor's bleachers are right at the edge of the field. It's a small school and there is no track, so the football players and cheerleaders are right in front of the fans. We sat down on the third row of the bleachers, I looked up at the players, and it literally took my breath away when I saw the stickers. And then there were the cheerleaders, several of whom were Hannah's good friends, smiling and laughing and having a great time. I was nearly overcome with sadness that Hannah was not there with us. I sat there choking back tears for several minutes, trying to look and act appropriately for those sitting around me. And then I spotted a young man, a senior who is one of the managers for the football team, who shared with Brad last week that he has recently surrended to the ministry. He told Brad that Hannah's testimony was influential in God leading him to this decision. It's amazing how God provides encouragement like that just when it is needed most. That made it a little easier to swallow the sadness and enjoy the game. And the Panthers put on a good show...winning 48-0! Go Panthers!!

Sunday, September 13, 2009

One Year Ago Today

A year ago today, Hannah, Bethany and I went to the American Idol concert in Oklahoma City. If you've followed Hannah's story, you know that she was a huge American Idol fan. She watched the show faithfully from the second season on (the Ruben/Clay year). She was one of those fans who would pick a favorite and vote for two solid hours every Tuesday night. From the third season on (the Fantasia/Diana year), we went to the American Idol concert every year. We would always go early in the afternoon and hang out around the venue trying to meet the singers (we jokingly called it "stalking")...and we were usually successful, getting lots of autographs and pictures every year. It was a fun thing that we always looked forward to doing together, and we would always order our tickets the first day they went on sale.

Last year's concert featured David Cook (the winner) and David Archuleta (the runner-up), along with the other top eight contestants. I didn't order the tickets right away (I believe they went on sale at the end of May), because I just wasn't sure how Hannah would be feeling. As the summer went on, though, she was doing well...she had completed her radiation treatments and was handling the oral chemotherapy with no real problems. She had had an MRI every two months since her surgery, and she had gotten an "all clear" every time. So, probably in July, I ordered tickets for the three of us girls (Brad never seemed to want to go with us...don't know why! (o; ) We were excited about the concert and were really looking forward to it. Hannah was a David Cook fan, and we had a special interest in him because his brother was battling brain cancer.

We spent that weekend with Brad's mom and dad, who live in Van Buren, so it would be a shorter drive to and from the concert in Oklahoma City. This was a blessing, because the weather was awful that weekend. The remnants of Hurricane Ike were blowing through Arkansas and Oklahoma, and we drove to Oklahoma City in heavy rain and strong winds. I remember that Hannah was somewhat tired when we left Van Buren that day, but that was not unusual, as the primary side effect of her chemo was fatigue. It was too rainy and yucky to do our usual "stalking" that afternoon, so we went out to eat instead. I noticed that Hannah actually seemed relieved that we would not be "stalking", even though she had been talking excitedly about it in the days leading up to the concert. We finally arrived at the concert, and showed our tickets to an arena worker, who directed us to the stairs. As we walked up the stairs, Hannah mentioned that she felt a little dizzy. This also was not really unusual...the radiation treatments had left her with a constant feeling of being "off balance"...her world was never completely level. We finally found our seats...in the very top row of the arena. And I mean the top row...the only thing behind us was the wall. We were definitely in what you would call the nosebleed section. As we sat waiting for the concert to start, Hannah again mentioned that she was dizzy, and we attributed it to the dizzying height at which we were sitting. She was very quiet during the concert...not singing along and yelling for her favorites like she usually did...and right about the time David Cook came out (the winner is usually saved for last at these concerts), she asked if we could leave. We immediately got up and left...and what a long ride back to Van Buren that was. We still had the incredibly heavy rain and the tropical storm force winds, and now it was pitch dark. But that's not really what made the trip so long.

As I drove through that stormy weather, a storm was building inside of me. That night, for the first time, I began to realize that Hannah might not survive this. At the time, as far as we knew, Hannah was cancer free. But deep down inside, I knew something was not right. It was the first time that I began to feel like we were losing her. We returned home to the Hot Springs area the next day and within about a week, Hannah developed what we thought was a stomach virus. After several days of nausea, the doctor ordered an MRI (about 10 days before her next routine scan was scheduled) and it revealed that the cancer had returned with a vengeance. There were now two tumors on her brainstem, and so many tumors up and down her spine that the doctor referred to them as "snowdrift" tumors. With tears in his eyes, he explained to the four of us that he believed Hannah had less than a five percent chance of survival at this point. Wow...what a blow! He did explain some treatment options, including a combination of chemo drugs that had shown some success with glioblastoma tumors, but really didn't give us much hope of cure. As the four of us drove home that day, we decided that we were just going to ignore that number...we knew that our God didn't deal in percentages. But, at the same time, we were just beginning to realize that God's plan for Hannah may not include earthly healing.

This post has become much longer than I intended it to be...I will share more on this topic another day...but I did want to mention what a wonderful time we had at Shady Grove Baptist Church in Prescott this weekend. They had a "Faith, Family, & Fun" emphasis this weekend, and we had the privilege of sharing our story both last night and this morning. What a precious fellowship of believers! This church has followed our story basically from the beginning, and took us in just like a part of their family. Of course, we are brothers and sisters in Christ, and it was apparent this weekend. They truly blessed us with delicious food, beautiful music, and wonderful fellowship. Thank you, SGBC!

Tuesday, September 8, 2009

Reunions & Remembrances

We spent some time in Mountain Home this weekend with family and friends. This past weekend was my 25th high school reunion...hard for me to believe, but true! It was a great opportunity to get reconnected with some wonderful old friends. I was really nervous before I went about being able to recognize people and remember their names. I knew there would be nametags, but you really don't want to have to stare at someone's nametag before greeting them! Funny...I didn't need nametags for the girls...most of them looked pretty much the same as they did when we graduated. But the guys...they were much harder to recognize! It's surprising how hair loss can really change someone's appearance!

Most of my former classmates had heard about Hannah's story, but there were a couple of awkward moments when those who did not know asked me how many children I had. I still haven't figured out how to answer that question without making people uncomfortable. I usually say that I have one daughter who's 14 and one who's in Heaven. This usually results in a shocked, jaw-dropping response, accompanied by a mumbled, "Oh, I'm so sorry..." This is the point where I usually get choked up and am unable to say anything else. Thankfully, this weekend, I was able to retain my composure and share a little bit of Hannah's story. Another sign of progress in this grief journey.

The mention of my child's name
May bring tears to my eyes,
But it never fails to bring music to my ears.
If you are really my friend,
Let me hear the music of her name.
It soothes my broken heart
And sings to my soul.
~Author Unknown

Speaking of Hannah's name...my 2-year-old niece, Julia, has always called Hannah "Arnie." Yesterday, I got an email from my sister-in-law in Indonesia (they are doing well) and she told me that she was telling one of their fellow missionaries about how funny we always thought that was. Her friend suggested that she look it up and see what the name Arnie actually means. Well, she looked it up, and here's what she found:

"Arnie is Hebrew for 'To sing.' Arnold (I looked it up because Arnie is a nickname for it) is Old German for 'Strong as an eagle.' Hannah did sing in her own way. Now, she gets to sing before the Lord God Almighty forever! We all know that that she was, and is now more so, as strong as an eagle! ~Laura"

God is good, all the time!

Friday, September 4, 2009

A Touching Tribute

It's Friday night...and that means high school football! Tonight was the first game of the year....and a convincing win for the Panther football team! Our Athletic Booster Club puts together a football program which is sold at the games, and every year it contains a letter to the fans from our head football coach/athletic director. Here is this year's letter:

"Dear Panther Fans:

Welcome to another exciting year of Panther football. Last year's team finished 8-4, and with the return of 12 seniors, this year should be another good one. The kids have been working hard since the beginning of July for Friday night football.

You may have noticed on the back of our helmets is a sticker with the letters "HS" and a gray ribbon. This is in honor of Hannah Sullivan who was promoted to heaven on February 26, 2009, from brain cancer. Hannah was a manager for the girls' basketball team and would have been a senior this year.

Instead of honoring the passing of Hannah, I would like for us to honor her life. She was my role model. As Hannah battled "her storm," three parts of her life stood out: her faith, belief, and love for God. The year-long battle only made these characteristics stronger in her life.

As I watched Hannah react in such a positive way to all this adversity in her life, I could only think how great it would be if the Panther football team could learn from Hannah and use these traits during the season. I challenge our players to have faith in one another and to work as a team and not as individuals.

I challenge the players to not only believe in their teammates, but also in the coaches and the many decisions they have to make during the season. Finally, I challenge the players to love their team despite any differences they may have.

I especially challenge the team to demonstrate these characteristics during the "rough times" of the game and the season. I encourage them to let their faith, belief, and love stay strong, and to continue to battle and be positive, no matter the outcome. Finally, I challenge the team not only to be like Hannah on the field, but also to model her life off the field.

I can't promise you, the fans, a state championship, or even a district championship if the team follows Hannah's example; however, I can promise you that at the end of the season we will be a better football team, better players, and most of all, better individuals! Panther Pride Runs Deep!

Thank you,

Coach Efird"

I have nothing else to add...Thank you, Coach.

Thursday, September 3, 2009

Safe Arrival

I heard from my brother tonight, and they have arrived safely at their new location in Indonesia. It was quite an adventure driving to the airport and getting a commercial flight out of their area with all the smoke, and there is even some smoke in their new location, but they are doing well. Thank you for your prayers!

Wednesday, September 2, 2009

A Series of Tremors

I cannot imagine what it would be like to lose a child suddenly, in some sort of tragic accident. Tonight at church I sat at a table with a couple who lost a child many, many years ago to a lightning strike. Earlier this week, I visited with a co-worker who lost a child just a few months ago in a drowning incident. No opportunity to say good-bye, no chance to tie up loose ends, no last words of love. Just an incredible, earth-shattering shock when one you love so much is suddenly gone from your life. I must say that I am grateful that God did not call me to walk that road.

It seems to me that losing a child to cancer must be a very different experience. Rather than one enormous earthquake, cancer consists of a series of tremors of different intensities. In our case, there was the initial shock of the brain tumor, the shock of the cancer diagnosis, the shock of hearing the devastating list of treatment side effects, the shock of seeing our child wearing a radiation mask and bolted to a table, the shock of the cancer's return, the shock of seeing our child bald, the shock of watching chemo drugs drip into our child's veins, the shock of each worsening MRI, the shock of hearing the doctor say there is nothing else they can do medically, the shock of entering hospice care, and the final shock of our child's death. Even though you reach a point where death is expected without a miraculous intervention from God, there is still a period of shock.

You know the feeling you have when you've been punched in the stomach? That is the feeling I had the entire time Hannah was sick. Our belief that God was in complete control of the situation, and our knowledge that He truly is good all the time sustained us and gave us an unexplainable, deep-down peace, but to be fully honest, I have to acknowledge that my feelings did not always line up with my beliefs. And I think that's okay...God created us with feelings and emotions and I believe He understands that human part of us, because He was human, too.

"For to this you have been called, because Christ also suffered for you, leaving you an example, so that you might follow in His steps." I Peter 2:21

Tuesday, September 1, 2009

Glioblastoma Multiforme

I've been sitting here for awhile tonight, trying to pull my thoughts together for a blog entry. I had sort of started a theme of sharing about the emotions I've experienced over the past 18 months, and then interrupted it with some other posts, following the death of Ted Kennedy and my brother's sudden move. I'd like to get back on that topic for awhile.

When Hannah was first diagnosed with cancer, it was such an incredible shock that for a few days, I just couldn't mentally process it. At first, Hannah didn't want anyone to know that she had cancer...we finally convinced her that we needed to let people know so they could pray for her. She also did not want anyone to know that she was going to have chemotherapy, so when I sent that first email explaining her diagnosis, I said that they were going to treat her with radiation and "medication." Of course, most people figured out that meant chemotherapy, and eventually, Hannah relented and allowed me to share more details. I remember when I sent that first email explaining her diagnosis, we received many, many wonderful, supportive responses. In those first couple of days, we also received emails from children's cancer support groups, some friends who had lost children to cancer, and someone who told me about where to get free wigs for cancer patients. I remember reading those emails and thinking, "No way...this is not for us...not for Hannah!" After a little time passed, I was ready to hear from those folks, but not immediately.

We got the diagnosis about ten days after Hannah's brain surgery. We had gone in to get her stitches removed, and knew that we would probably receive the results from the pathology report. I remember that Hannah climbed up on the table, the surgeon did a brief exam of her incision, and then he told us that the pathology report indicated that Hannah's tumor was a glioblastoma multiforme. He had told us the day after the surgery that these tumors are rated on a 1 to 4 scale, with 4 being the most serious (he never used the word cancer). Brad asked him what Hannah's tumor was, and I clearly remember him saying, "This is a Four." Those words reverberated inside my head for quite some time. Then he introduced us to our oncologist, who entered the room accompanied by three other people. He gently explained the fact that glioblastoma multiforme is a very aggressive brain cancer with a nearly 100% fatality rate in adults. He also explained that Hannah's youth and the fact that it had been removed put her in a more favorable position. He outlined the course of treatment...radiation and oral chemotherapy...and left us with these other people, who I later figured out were social worker/counselor type people. I guess they figured we would each need one of our own after hearing that news. The one who appeared to be the head counselor offered Hannah an assortment of ugly teddy bears, and I remember that she chose what I thought was the ugliest one. As if a teddy bear would fix the problem. We were stunned by the news, but the peace of God was upon us because we had already put Hannah in his hands, and I don't think we even cried while we were there. Once they saw that they were not going to need to scrape us up off the floor, the counselors left too. Then, after all this, Hannah had to roll over onto her stomach and let them pull her stitches out...all I really wanted to do was hold her at that point, but I had to settle for just holding her hand. We left there that day, went to Firehouse Subs, and prayed over our lunch, again putting Hannah's future in God's hands.

More to come....

P.S. I have not yet heard from my brother in Indonesia. They are going to have to live with another missionary family in their new location, and may or may not have access to the internet. Thanks for the prayers...I'll let you know when we hear from them.

Monday, August 31, 2009

Smoky Season in Indonesia

My brother, Steve, his wife, Laura, and their precious daughters, Julia and Katie Joy, are missionaries with Mission Aviation Fellowship in Indonesia. This is a picture of the conditions that they have been living in for the past month. This is the time of year when all the farmers burn off their fields, and that combined with peat moss burning in the jungle and an unusual lack of rain has led to extremely smoky conditions. He is unable to fly because of the smoke and because the rivers have gotten too low for him to take off and land on, so they are evacuating to another area of Indonesia, which is where they used to live before he began flying float planes. They are concerned about Julia and Katie breathing any more of this stuff. It's been a difficult decision to come to, because they worry about how it is perceived among the locals with whom they have built relationships that they can just up and leave, yet the locals have to remain in the smoke. They will be flying out at 2:00 a.m. their time today (2:00 p.m. our time), so please pray for safety and for God's will to be done in this situation.

Saturday, August 29, 2009

Hannah's Room

I'm writing today from Hannah's bedroom. We haven't spent much time here since she left for Heaven. When we came home from the hospice center on February 26th, this was the first place we went. We spent some time, the three of us, just sitting on her bed and talking about her. The next day, Bethany and her cousins chose some clothes from her closet for her to wear in the casket. Since then, we've been in here very little. I put all the baskets of cards, letters, etc., we received during and after her illness in here, along with some of her personal items we've been given from her teachers (projects, papers, etc.). Bethany and I did come in here one day and we went through the clothes hanging in her closet. She picked out several shirts that she liked and tried them on. They all fit her perfectly, and she's been wearing some of them to school. We both decided we would rather see her wear them than for them to just hang in here, unused. Although it's sometimes a little strange to see her wearing some of Hannah's favorite clothes, it's kind of nice, too.

I'm sitting here on her bed, and I thought I would give you a description of some of the things in her room...just to give you a little window into Hannah's personality. When you walk into her room, the first thing you see (and the most gut-wrenching for me) is her letter jacket with "Hannah Joy" on the back of it hanging over the bedpost. In one of the most ironic events of her illness, she received that jacket the day we found out that her cancer had returned with a vengeance. That was also the day she ordered her class ring. What a strange thing that was...to receive those symbolic items of high school completion on the day we first began to understand that she may never finish high school. She had looked forward to receiving her letter jacket for a long time...and she actually only wore it a few times. Her purse is hanging from the other bedpost, with her driver's license and Hunter's Education card in the wallet inside.

Her bedroom walls are painted a dark red color...the room was this color when we bought the house, and she immediately chose this room as her own. Her bedspread is white and black, as you can see in the picture, and there is a black shag rug on her floor. The rug was necessary to cover up the Nike Swoosh that the former owners had painted on the floor...who paints a Nike Swoosh on a wood floor? We didn't know it was there until we moved into the house...they, of course, had it covered up with a rug.

To my left, hanging on Hannah's wall, is a framed poster of downtown El Dorado..."Arkansas' Original Boomtown". Of all the places we've lived, El Dorado was Hannah's favorite. She had such good friends there, and she absolutely loved that place!

Hannah's room has the best view in the house. We live in the country, on a hillside, and from here, when I look out the window, all I see is trees blowing in the breeze. Some of those trees we planted the year we moved into this house, and they have really grown over the past summer. For some reason, it makes me sad that I can't show Hannah how much taller they are now than they were in February.

On the floor beside her dresser, in a stand, is a porcelain doll which once belonged to Hannah's great grandmother, Frankie Stahl Owens. Hannah adored her "Grandma Frankie", who went to Heaven in July 2008, and during the last days of her illness, she was comforted by the fact that Grandma Frankie would be waiting to greet her when she got there.

Her dresser has a bunch of stuff on top of it...a funny little trombone player that her Aunt Sarah gave her back when she played the trombone in 7th grade; a picture of her and former American Idol contestant Ace Young; the wide headband she wore every day to cover up the bald patches from radiation; a stuffed animal she received from Arkansas Children's Hospital when she had to get platelets on Christmas Eve; a picture of the high school choir wearing their Alice in Wonderland T-shirts--a performance that she did not get to participate in due to low blood counts; an All-Region Choir patch; her sunglasses; some silk flowers sent by her good friend Paige after she died; and a picture of her and her friend Brittany.

To my right is what we jokingly called her "Wall of Fame". Hannah was a highly motivated student and was extremely proud of her academic achievements. On this wall is a group of plaques (shown below) which include the following: "Outstanding Student in Social Studies, Algebra I, and Career Orientation--2006"; "Outstanding Student in Health & Physical Science--2007"; and "Outstanding Student in Spanish I, World History, and Pre-AP Biology--2008". She also has a plaque for "Miss Congeniality" in the Miss Magnet Cove pagent in 2007; and the ones she was most proud of because they were voted on by the teachers..."Outstanding Freshman Student MCHS 2007" and "Outstanding Sophomore Student MCHS 2008". Her nightstand is right beside her bed, and the drawers are full of letters from her friend Brittany (yes, Brittany, she kept them all!). I always thought it was neat that they sent letters to each other, even in this day of email, Facebook, and texting. She also has a bunch of notes in there from her youth group meetings. She has a hand-woven container from Indonesia (given to her by her aunt and uncle) in there that is full of money. On top of her nightstand is her Bible and a copy of "My Utmost for His Highest" by Oswald Chambers. There's also a picture of her and her Sullivan cousins, and a picture of her and her Magnet Cove friends. Her bulletin board is right above that, and it is full of pictures...church camp, Odyssey of the Mind, her 4th grade class, her cousin Julia, and two strips of pictures of her and her friends and one strip of pictures of her and Bethany from those photo machines at the mall. There's also a Valentine's Day note from Brittany, a couple of American Idol concert ticket stubs, her number from the Miss MCHS pageant, and a sticker that says, "He Died For You".

One of these days, we're going to have to do something with all of these things. How do you do that, though? We've discussed making something special out of this room...a quiet, peaceful, inviting kind of room, a place where you can study your Bible, or spend some time with the Lord. I'm ready to open the shades, let the sun shine in, and keep the door of this room open again. But I'm not sure how to do it yet...we're still waiting for God's timing.